Skip to main content

1 more sleep

 Tomorrow Braylon will be here! We will probably have to do a quick outside visit when they get to town, but hoping to get him inside Thursday and Saturday. Sounds like we got the visits approved, but are waiting to hear back on the times/days.

Pax had fun at school group today. They did a STEM project making Christmas trees out of Dots candy and toothpicks. He’s learning to write with his left hand and is doing great.

We received 2 packages today. The one from Aunt Kristen and Uncle Levi were some of our favorite books we read together. They sent us the whole series, we are super excited. Great Aunt Pam sent a bunch of Christmas cookies for the staff that’s been taking care of us. All the nurses and therapists were so grateful.

Paxton continues to blow everyone away with his quick progress. He listens to everything they tell him and is the hardest worker they’ve seen. I’m so incredibly proud of him.

We are beyond excited to have our family together for the first time in almost a month. It’s been so hard on all of us in different ways. 

Thanks to you all. I appreciate the support. ❤️

Janell


Comments

  1. UnknownDecember 21, 2021 at 6:07 PM

    So happy for you to have your family together...heartwrenching but so much amazing progress. Love you!

    ReplyDelete

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Making Progress

 About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories!  Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...
1 comment
Read more

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...
1 comment
Read more