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12/6/21

 I can’t believe it’s been a week since this journey started. Literally the scariest week of our lives. We are so thankful Paxton fought hard to get out of the PICU and is continuing to fight hard today on the rehab floor. 

We started the day with some PT. He likes going to the therapy gym but is still learning the effects the stroke had on his body. He gets very emotional during these sessions, but that doesn’t stop him from working. 

The next therapy was a surprise, dog therapy. He met the sweetest lab that cuddled in bed with him. The dogs name is Nella, and she visits on Mondays.

Speech therapy went good. We are working on alternative forms of communication so he isn’t so frustrated. We also worked on different mouth movements which I can see are getting better. His smile is getting fuller on the room right side.

Paxton was able to score an Xbox for his room. Tomorrow they are supposed to bring an adaptive controller so he can play with just his left hand. We also played with some kinetic sand and took some walks in his chair. Tomorrow we will start decorating his room for Christmas. He’s pretty excited about that.

Braylon is still hanging in there. One of the social workers is making him a book to help understand everything and show him pictures of the equipment we are using. They also have a robot that can follow us and Bray can see first person through the robot’s eyes what we are doing. We might try to take him on a tour next week with it when Pax is a little stronger.

All in all it was a good day. He is absolutely exhausted and crashed out. He’s definitely missing school, his friends, and family. Everyday he gets a little stronger. We’ll get there.

Thanks again for all the love and support. It definitely keeps us going. 

Janell


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