Skip to main content

12/6/21

 I can’t believe it’s been a week since this journey started. Literally the scariest week of our lives. We are so thankful Paxton fought hard to get out of the PICU and is continuing to fight hard today on the rehab floor. 

We started the day with some PT. He likes going to the therapy gym but is still learning the effects the stroke had on his body. He gets very emotional during these sessions, but that doesn’t stop him from working. 

The next therapy was a surprise, dog therapy. He met the sweetest lab that cuddled in bed with him. The dogs name is Nella, and she visits on Mondays.

Speech therapy went good. We are working on alternative forms of communication so he isn’t so frustrated. We also worked on different mouth movements which I can see are getting better. His smile is getting fuller on the room right side.

Paxton was able to score an Xbox for his room. Tomorrow they are supposed to bring an adaptive controller so he can play with just his left hand. We also played with some kinetic sand and took some walks in his chair. Tomorrow we will start decorating his room for Christmas. He’s pretty excited about that.

Braylon is still hanging in there. One of the social workers is making him a book to help understand everything and show him pictures of the equipment we are using. They also have a robot that can follow us and Bray can see first person through the robot’s eyes what we are doing. We might try to take him on a tour next week with it when Pax is a little stronger.

All in all it was a good day. He is absolutely exhausted and crashed out. He’s definitely missing school, his friends, and family. Everyday he gets a little stronger. We’ll get there.

Thanks again for all the love and support. It definitely keeps us going. 

Janell


Comments

Post a Comment

Popular posts from this blog

Denver

 Yesterday Pax had his MRI and angiogram. They found a small AVM that caused the bleed. This abnormal vessel will need to be removed. It happens to lie right on the pronunciation speech center of his brain. There is a risk of him have temporary or permanent set backs in his speech with the removal. The neurosurgeon is consulting with other specialists to determine the best way to remove it. The vascular neurosurgeon said it’s close to the surface, which is good. We aren’t sure when the surgery will take place, but it doesn’t sound like this trip. I have a mixture of emotions. On one hand, I’m glad we know the cause and it can be fixed, but the risks are scary. Of course we’ve gotten ice cream since we’ve been here. He was thrilled to see they had Cookie Butter this week. We have an appointment with the rehab doctor today so I’m sure we will be getting more ice cream today. Thanks for keeping us in your thoughts and for all the love and prayers. I will update the blog when I know mo...
1 comment
Read more

Christmas Miracles

 We have some great news…Paxton started walking on his own! He literally went to PT in the morning being helped by his therapists and a hour later came walking back without assistance. He is literally blowing everyone away. So many people have told me that he is the hardest worker they’ve ever had. We are so incredibly proud of him. We kept the secret from Brandon and when he got here tonight, Paxton got up from his wheelchair and walked to give him a hug. Lots of happy tears were shed. He fatigues really quick and still has some work to do to perfect his stride, but he’s crushing it! I tried to upload the videos but I can’t get them to work. I will keep trying. My favorite response is from Eva and Nellie. They sent an awesome video in response, but I can’t get it to upload either. Grrr Bray and Pax were so excited to see each other. They hugged and were so sweet to one another. Bray and I cried as soon as we saw each other. I have a feeling these next few days will go by much too ...
1 comment
Read more

Feeling Better

 Pax is doing much better today. His silly personality is back. ❤️ He’s still a little swollen but much better. His jaw hurts a little less so he’s eating more. He crushed it at PT yesterday, and can’t wait to go back to the rehab gym later today. His angiogram is first thing tomorrow morning. He hates being sedated and can’t get up and move for 4 hours after the procedure. They will keep us overnight tomorrow for monitoring, and if all goes well he will be discharged Thursday. We had an appointment with the Acquired Brain Injury Clinic on March 24th and they were able to move it to this Thursday. This is a huge relief, the flights are exhausting and expensive. I don’t think we have to come back for 3 months…wahoo! He’s seriously so brave, strong, and had such a positive attitude. His attitude is the only thing that’s kept me so positive. I’m beyond proud of him and am striving to be more like him. Thank you all so much for all the support. We are so grateful for each and every per...
Post a Comment
Read more