Skip to main content

12/9/2021

 Paxton had a HUGE day. He was able to lift his right leg on his own while laying in bed and he is starting to get his voice back! I understood him when he said “ice cream”, so of course we went and got him some. The therapists and doctors are amazed at his progress today. He’s in great spirits and I think he can finally see things will get better. I think today is the first day I only cried happy tears a s zero sad tears. Fingers crossed tomorrow is much like today.

The gaming specialist made it in today and helped Paxton get an adaptive remote for theXbox. It’s so cool that he can play with only his left hand. He is super excited for Brandon to come tomorrow so they can play. 

We are continuing to decorate his room for Christmas. We decided we want it to look like Buddy the Elf lives here. His grandparents sent him a super cute bouquet of flowers shaped like a dog in a red chimney vase. Fits our current decor perfectly. Paxton even got his picture taken with a therapy dog in elf gear. We love all the dog visits here.

Brandon’s cousin Anna sent be me a tea kettle and travel mug. It’s so nice not to go to parent lounge all the time.

Tomorrow, Paxton’s school is holding a “Paxton Brown Day” fundraiser. We are so fortunate for our Boulder Family. His teacher, Mrs. Steffes, and the principal, Mr. Venner, check on us frequently which has been so kind and very much appreciated.

Bray is beyond excited for the weekend. We are so thankful for everyone helping out and distracting him a little.

Thanks for all the support and love. 

Janell




Comments

Post a Comment

Popular posts from this blog

Denver

 Yesterday Pax had his MRI and angiogram. They found a small AVM that caused the bleed. This abnormal vessel will need to be removed. It happens to lie right on the pronunciation speech center of his brain. There is a risk of him have temporary or permanent set backs in his speech with the removal. The neurosurgeon is consulting with other specialists to determine the best way to remove it. The vascular neurosurgeon said it’s close to the surface, which is good. We aren’t sure when the surgery will take place, but it doesn’t sound like this trip. I have a mixture of emotions. On one hand, I’m glad we know the cause and it can be fixed, but the risks are scary. Of course we’ve gotten ice cream since we’ve been here. He was thrilled to see they had Cookie Butter this week. We have an appointment with the rehab doctor today so I’m sure we will be getting more ice cream today. Thanks for keeping us in your thoughts and for all the love and prayers. I will update the blog when I know mo...
1 comment
Read more

Quick Update

 He’s done. Took about 10.5 hours. It was MUCH more complicated than anticipated. They say he's doing  good. We are headed up to the icu now to see him. Thanks for all the support. I will update more tomorrow. 
Post a Comment
Read more

Christmas Miracles

 We have some great news…Paxton started walking on his own! He literally went to PT in the morning being helped by his therapists and a hour later came walking back without assistance. He is literally blowing everyone away. So many people have told me that he is the hardest worker they’ve ever had. We are so incredibly proud of him. We kept the secret from Brandon and when he got here tonight, Paxton got up from his wheelchair and walked to give him a hug. Lots of happy tears were shed. He fatigues really quick and still has some work to do to perfect his stride, but he’s crushing it! I tried to upload the videos but I can’t get them to work. I will keep trying. My favorite response is from Eva and Nellie. They sent an awesome video in response, but I can’t get it to upload either. Grrr Bray and Pax were so excited to see each other. They hugged and were so sweet to one another. Bray and I cried as soon as we saw each other. I have a feeling these next few days will go by much too ...
1 comment
Read more