Another Lazy Sunday

Not a whole lot happened today. I took a nice nap while Brandon and Paxton hung out. We went on our daily ice cream run and we enjoyed it outside in the sun. It was beautiful here today.

Pax has been getting a lot of headaches on the left side. He has a history of migraines but is indicating that these feel different. They are going to do a MRI tomorrow just to make sure nothing has changed. They aren’t overly concerned, but don’t want to miss anything. He has to be sedated and the appointment isn’t until 4:00. He’s going to be one hungry boy when he wakes up.

Tomorrow is his first day of school group. He’s super excited. A couple of kiddos discharged this weekend so I’m not sure how many there will be in the class.

Bray had a blast at the rodeo and spending time with my family. Today he spent the day at his friend Caiden’s house. We are very fortunate to have so much help.

Thanks again for everyone’s support and generosity. We appreciate all of you.

Janell

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Paxton’s First Health Update

I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own. Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

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About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories! Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...

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We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...

Paxton's Progress

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