Skip to main content

Christmas Eve

 Merry Christmas Eve! Paxton made gingerbread houses at his group session today, they looked great! You’d never know he made them with his left hand. He said he made Flathead Lake. We had such a blast there this summer. 

Bray and I went to a Denver Nuggets game last night and went to the aquarium today. We’ve really enjoyed our time together and tried not to think about him leaving on Sunday. 

Bray was able to come to the hospital for his monthly sibling visit tonight. The boys played Xbox and truly enjoyed their time together. We ordered Chinese takeout which took 3 hours to get here, but it was really good. We played Trouble and I did some laundry. 

Pax and I set out cookies and milk for Santa. He’s just as excited for Christmas this year as he has been for all the previous years. Being here hasn’t changed his attitude at all. I need to take some life lessons from this kid.

Tomorrow Bray gets to come back to the hospital for his holiday visit. We are having cinnamon rolls for breakfast. He’s only allowed up here for a couple hours, so we will make the most of it.

Merry Christmas to all of you. Thank you for your love during this crazy time for our family. Hope everyone has a wonderful day. Love to all of you! 💚❤️💚❤️



Janell


Comments

Popular posts from this blog

NASA Day!

 We just had the coolest visitor, former NASA astronaut, Ron Garan! My brother and Amanda did a cameo.com message with Ron for Paxton last week. Ron then reached out to Amanda and said he lived in the area and wanted to meet Paxton. He brought patches from his missions including one that he actually wore in space. He also wrote two books, one children’s book and one adult book that he signed for each of us. We can’t wait to read them! He stayed for about an hour and was so sincere and genuine. We are still in shock I think! Paxton’s day was full of therapies. After his afternoon PT session they said he was doing things he was unable to do during the morning session. He is crushing it! We are still going downstairs for his daily ice cream run. He deserves it after all his hard work. Tomorrow he will have a swallow study to see what he can safely eat and drink. We really want to get the NG tube out as soon as we can. Pax received 3 care packages today. He loves when the volunteers br...

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...