Skip to main content

Fun Friday

 Sorry my Friday post is a little late. Brandon came to town yesterday and I stayed at the hotel. I was catching up on a podcast and planning on updating the blog when I was done, but I fell asleep.

Pax had a great day yesterday. He got to ride the bike again but this time they played Christmas music and he rode around the lobby. His therapist are in love with him and wanted to show him off. I know no one is surprised! 

When Brandon came to town he gave Paxton a bunch of cards from last Friday’s Paxton Day. He loves reading mail from his Boulder Family. We hung them up all around his room and told him he’s still part of that group and we will be back soon.

He received two packages yesterday, one from Auntie Kacie and Uncle Daniel, and one from Aunt Coco and Uncle Brian. He loves receiving mail.

At afternoon physical therapy they had Paxton doing push-ups. They said he did 15! They said the muscles in his arms are starting to wake up. We are so grateful for all the progress.

Last night he wanted to finish the day off with some Applebee’s. His favorite thing are the soft pretzel sticks. He ate two of them and a smoothie. We are pretty sure he crushed the calorie count for the last three days. We will find out this morning if he can keep the feeding tube out. I’m not concerned about it, he’s been doing great.

Bray spent the night at his friend Cooper’s house. They got to go sledding at night. I haven’t heard from him about how it went because he was too busy apparently to text me back. Cooper’s mom assured me they had a blast and I know he’s in good hands. Today he is hanging out with my dad, Jess, and Amanda. They are headed to the Chase Hawks rodeo tonight. This is an annual tradition for our family. 

Today Paxton has group therapy and they are making Christmas cookies. He is beyond excited for group. He continues to have an amazingly positive attitude and keeping his head held high.

Thank you for all the love, support, prayers, and donations. We are so grateful for each and every one of you. 

Janell


Comments

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Making Progress

 About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories!  Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...
1 comment
Read more

Deep Breaths

 We got all the pre op testing and appointments done. We check in at 5:30 AM and surgery starts at 7:30. They expect the procedure to take 8-9 hours. A nurse from the OR should call us about every hour with updates. He will end up with a titanium plate and screws and a decent incision. He was excited to hear that he will have titanium in his body (he apparently knows a lot about it and educated me). After all his appointments, we went to the zoo. It was a gorgeous day and we wanted the fresh air. Brandon is having plane problems and still isn’t here. Fingers crossed he will get to Denver around 11 tonight. It’s been a long day for him, too. Bray got a surprise care package from Kacie, Daniel, Amanda, Milty, Mike, and Lindsey. He also got to hang out with some of his favorite pups while hanging with Kacie. Tonight he will most likely stay up too late watching movies with Uncle Kevin. Thanks to literally all of you. So many people have reached out and we are so lucky to have all of y...
1 comment
Read more