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NASA Day!

 We just had the coolest visitor, former NASA astronaut, Ron Garan! My brother and Amanda did a cameo.com message with Ron for Paxton last week. Ron then reached out to Amanda and said he lived in the area and wanted to meet Paxton. He brought patches from his missions including one that he actually wore in space. He also wrote two books, one children’s book and one adult book that he signed for each of us. We can’t wait to read them! He stayed for about an hour and was so sincere and genuine. We are still in shock I think!


Paxton’s day was full of therapies. After his afternoon PT session they said he was doing things he was unable to do during the morning session. He is crushing it! We are still going downstairs for his daily ice cream run. He deserves it after all his hard work.

Tomorrow he will have a swallow study to see what he can safely eat and drink. We really want to get the NG tube out as soon as we can.

Pax received 3 care packages today. He loves when the volunteers bring in the boxes to him. He received books, a Christmas Baby Yoda, games, sensory toys, comics, 2 custom drawings, cards, and a lot more. He’s definitely feeling the love. There were gift cards, fuzzy Christmas socks, a blanket, and cards for me as well. Thank you to Clark, Jennie, Mrs. Moses, Julia, Ryan, Jose, Aunt Coco, and Uncle Brian. You all spoiled us!

We had a full day and are exhausted. We are both headed for some solid sleep. Thank you for all your kindness through this journey for us. We love you all.

Janell


Comments

  1. UnknownDecember 14, 2021 at 7:04 AM

    Amazing what all the prayers, love and generosity can do. Happy for all the progress. Much love and more prayers. Mom

    ReplyDelete

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