Pax was feeling much better today and was able to participate in all of his therapies. He’s continuing to make progress. Next week they are adding a school group to his day. He’s so busy, and he prefers it that way.
Paxton is making great progress with eating. Fingers crossed the calorie count will be high enough at the end of tomorrow that the feeding tube can stay out.
Bray and Pax FaceTimed today and even had dinner together. We all got Wendy’s (Paxton’s choice). He’s able to eat the nuggets and fries if I chop them up super small. He was super happy not to have hospital food tonight.
We played with some clay today, both only using one hand. We made a bird and a monkey. We were pretty proud of the results.
I ended up with shingles, so I’ve been trying to get more rest and get outside every day for some fresh air trying to help with the stress.
We are headed to bed early tonight. We are both exhausted but thankful for another successful day. He is being so strong and patient.
Thanks to all of you for your continued love, prayers, and support.
Janell
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