Progressing Everyday

The doctors and therapists continue to be amazed by Paxton. The can’t relate his MRI pictures to how he looks clinically. His hemorrhage was very large and will take at least another month until we can actually see what’s under there and find the potential cause.

Pax is super interested in learning about his stroke and the effects of different parts of the brain. They have printed out a bunch of his images from the MRI to explain it to him. He loves looking at all the different views. He said I could share one of these images so people could see what happened. He also hopes it helps everyone understand why he speaks differently and walks a little uneven. There’s rumors we are getting out soon and he’s nervous to see people for the first time.

As you can see the bleed is very large and is right over the speech center of his brain. He will continue therapies at home, his recovery is far from over. We are so proud of his hard work and determination. We should know by tomorrow what the new discharge date is.

Paxton spent the day in between therapy appointments with Brandon. His schedule is so busy but him and Brandon were able to hang out and even continued the ice cream tradition.

Bray and I spent the day at the Denver Zoo. The weather was great and we got to see a lot of the animals up and roaming around. I promised I would take Pax when we come back for one of our many follow up visits.

Hopefully Brandon and Bray will be able to fly out tomorrow without too many delays or complications. Pax has another full day of therapies plus our meeting with his team to discuss coming home. We will keep you posted.

Thanks for the continued love, support, and prayers. We are so grateful for all the kindness.

Janell

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NASA Day!

We just had the coolest visitor, former NASA astronaut, Ron Garan! My brother and Amanda did a cameo.com message with Ron for Paxton last week. Ron then reached out to Amanda and said he lived in the area and wanted to meet Paxton. He brought patches from his missions including one that he actually wore in space. He also wrote two books, one children’s book and one adult book that he signed for each of us. We can’t wait to read them! He stayed for about an hour and was so sincere and genuine. We are still in shock I think! Paxton’s day was full of therapies. After his afternoon PT session they said he was doing things he was unable to do during the morning session. He is crushing it! We are still going downstairs for his daily ice cream run. He deserves it after all his hard work. Tomorrow he will have a swallow study to see what he can safely eat and drink. We really want to get the NG tube out as soon as we can. Pax received 3 care packages today. He loves when the volunteers br...

Paxton’s First Health Update

I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own. Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...

Paxton's Progress

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