Bittersweet Goodbyes

Well, we made it through the last day of therapies and coordinating home treatments. It was really hard to say goodbye to everyone who helped Paxton not only survive, but progress so quickly. We shared a few tears with a few of the therapists and nurses today.

My dad and Krissi made my life so much easier today. They got us boxes and a few things I needed to travel home. Krissi and I packed up all our stuff and they took it to be shipped to us. We were then able to have our last ice cream date (until next month).

Pax had a lot of final evaluations at all therapies today getting ready to transition to outpatient work. He is exhausted but so ready to go home. I am slightly nervous about getting home tomorrow because there is a winter storm coming into Denver and we are already getting warnings of possible delays and cancellations. All we want to do is get home.

We will continue to keep everyone updated on progress and the results of future appointments. Today it sounded like we will be back a few times in February. We are so thankful for the Billings Clinic medical team for sending us to the best place we could be. We are so grateful for every single employee and volunteer we encountered during our stay. We also are beyond blessed to have all the support of family, friends, neighbors, the Boulder Elementary Family, and strangers.

Good night.

Janell

Comments

Paxton’s First Health Update

I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own. Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...

12/12/21

Today local bikers had a toy run for the hospital. It was a beautiful day so we were able to go out and watch them ride in on their motorcycles. Santa read a few stories after the bikes came through. It was really fun to watch. The rest of the day consisted mostly of ice cream and football. We do some PT on our own on Sundays and of course he wants to do more than they tell us to. Tomorrow we have a full day of therapies, and then former NASA astronaut, Ron Garan, is supposed to come up for a visit. We are so excited. Paxton can’t wait! Bray had a blast at his aunt and uncle’s this weekend. They kept him busy and completely spoiled him. Brandon went back to Billings today. It was great for him to see all the progress Paxton has made. Zumi came back from her dream vacation on the ranch with Tessa. Brandon said she whined and stood at the front door after she left. Apparently she spent the weekend running around the corrals with the cows. We are looking forward to what this we...

Paxton's Progress

Search This Blog