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Busiest Day Yet

 Wow, today was so busy. Pax did a lot of therapy and finished up his neuropsych testing. We even did a community outing with PT and OT to Panera. He ordered a brownie and didn’t even want to rest to eat it so we headed right back. He chose to take the stairs instead of the elevator on the pedestrian bridge. He’s so amazing!

Papa and Krisi made it here this afternoon. Papa was blown away by Paxton’s progress. The last time he saw him he was in the PICU, couldn’t talk, eat (or even stick out his tongue) and today he showed him how he can jump and even squeeze papa’s hand with his right hand. Papa also received the best gift, a hug with both arms. ❤️

I started taking down all the cards and notes everyone sent. It was really bittersweet for me. I also spent the day doing paperwork, calling doctor’s offices, contacting the school to get set up for when we go home. My dad and Krissi are helping with the packing and shipping of everything we’ve collected home. I’m so grateful for their help.

Tomorrow is the last day of therapies. We fly out at 11 AM on Wednesday. I’m feeling so many different emotions leaving here. I can’t wait to see Bray, Brandon, and Zumi but it’s hard to leave this incredible team. They saved Paxton’s life and gave him back more function already than what was expected at the beginning of this. I know Paxton played a huge role in it to, but they definitely worked as a team. Don’t be surprised if you see us out and about and I shed some tears. It’s still really hard for me to think about and I’m pretty sure I haven’t fully processed it all.

I couldn’t have done all this without all the love, support, and help. I’m forever grateful to all of you. 

Janell

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