Skip to main content

Busiest Day Yet

 Wow, today was so busy. Pax did a lot of therapy and finished up his neuropsych testing. We even did a community outing with PT and OT to Panera. He ordered a brownie and didn’t even want to rest to eat it so we headed right back. He chose to take the stairs instead of the elevator on the pedestrian bridge. He’s so amazing!

Papa and Krisi made it here this afternoon. Papa was blown away by Paxton’s progress. The last time he saw him he was in the PICU, couldn’t talk, eat (or even stick out his tongue) and today he showed him how he can jump and even squeeze papa’s hand with his right hand. Papa also received the best gift, a hug with both arms. ❤️

I started taking down all the cards and notes everyone sent. It was really bittersweet for me. I also spent the day doing paperwork, calling doctor’s offices, contacting the school to get set up for when we go home. My dad and Krissi are helping with the packing and shipping of everything we’ve collected home. I’m so grateful for their help.

Tomorrow is the last day of therapies. We fly out at 11 AM on Wednesday. I’m feeling so many different emotions leaving here. I can’t wait to see Bray, Brandon, and Zumi but it’s hard to leave this incredible team. They saved Paxton’s life and gave him back more function already than what was expected at the beginning of this. I know Paxton played a huge role in it to, but they definitely worked as a team. Don’t be surprised if you see us out and about and I shed some tears. It’s still really hard for me to think about and I’m pretty sure I haven’t fully processed it all.

I couldn’t have done all this without all the love, support, and help. I’m forever grateful to all of you. 

Janell

Comments

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Making Progress

 About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories!  Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...
1 comment
Read more

Deep Breaths

 We got all the pre op testing and appointments done. We check in at 5:30 AM and surgery starts at 7:30. They expect the procedure to take 8-9 hours. A nurse from the OR should call us about every hour with updates. He will end up with a titanium plate and screws and a decent incision. He was excited to hear that he will have titanium in his body (he apparently knows a lot about it and educated me). After all his appointments, we went to the zoo. It was a gorgeous day and we wanted the fresh air. Brandon is having plane problems and still isn’t here. Fingers crossed he will get to Denver around 11 tonight. It’s been a long day for him, too. Bray got a surprise care package from Kacie, Daniel, Amanda, Milty, Mike, and Lindsey. He also got to hang out with some of his favorite pups while hanging with Kacie. Tonight he will most likely stay up too late watching movies with Uncle Kevin. Thanks to literally all of you. So many people have reached out and we are so lucky to have all of y...
1 comment
Read more