Exhausting but Good Week

Wow, this week was busy. Pax went to school Monday through Thursday from 9:00-11:00. He always wanted to stay longer, but would crash when we got home. He brought his Harry Potter Spot It game to play at recess with his friends. He was able to participate in math lessons, which are his favorite part of the day. He had 5 appointments this week as well. All of them went good and we are trying to adjust to our new busy routine.

Today after his appointment, Brandon took him to Scheels to get new shoes and play a few games. He even got a strike with his left hand while bowling there. They then went to lunch and came home to play board games. I was able to nap and take the dog for a walk during this time.

Tonight, we ordered pizza and had a family game night. It was so nice to have the 4 of us together laughing again. I cherish my family so much. Braylon wanted to sleep in Paxton’s room tonight, so he is in the hammock under Paxton’s loft bed. I have a monitor to keep an eye on Pax at night so I’m sure I will know right away if he doesn’t make it all night in the hammock.

Everyone has been so kind and patient with us since we’ve been back. We are so lucky to be surrounded by such a great community. I truly feel so grateful my kids go to Boulder, they’ve all been amazing this week. I want to thank you all again for all the love and support. We are adjusting to our new normal and thankful for all of Paxton’s progress. We love you all.

Janell

Comments

Denver

Yesterday Pax had his MRI and angiogram. They found a small AVM that caused the bleed. This abnormal vessel will need to be removed. It happens to lie right on the pronunciation speech center of his brain. There is a risk of him have temporary or permanent set backs in his speech with the removal. The neurosurgeon is consulting with other specialists to determine the best way to remove it. The vascular neurosurgeon said it’s close to the surface, which is good. We aren’t sure when the surgery will take place, but it doesn’t sound like this trip. I have a mixture of emotions. On one hand, I’m glad we know the cause and it can be fixed, but the risks are scary. Of course we’ve gotten ice cream since we’ve been here. He was thrilled to see they had Cookie Butter this week. We have an appointment with the rehab doctor today so I’m sure we will be getting more ice cream today. Thanks for keeping us in your thoughts and for all the love and prayers. I will update the blog when I know mo...

Christmas Miracles

We have some great news…Paxton started walking on his own! He literally went to PT in the morning being helped by his therapists and a hour later came walking back without assistance. He is literally blowing everyone away. So many people have told me that he is the hardest worker they’ve ever had. We are so incredibly proud of him. We kept the secret from Brandon and when he got here tonight, Paxton got up from his wheelchair and walked to give him a hug. Lots of happy tears were shed. He fatigues really quick and still has some work to do to perfect his stride, but he’s crushing it! I tried to upload the videos but I can’t get them to work. I will keep trying. My favorite response is from Eva and Nellie. They sent an awesome video in response, but I can’t get it to upload either. Grrr Bray and Pax were so excited to see each other. They hugged and were so sweet to one another. Bray and I cried as soon as we saw each other. I have a feeling these next few days will go by much too ...

Feeling Better

Pax is doing much better today. His silly personality is back. ❤️ He’s still a little swollen but much better. His jaw hurts a little less so he’s eating more. He crushed it at PT yesterday, and can’t wait to go back to the rehab gym later today. His angiogram is first thing tomorrow morning. He hates being sedated and can’t get up and move for 4 hours after the procedure. They will keep us overnight tomorrow for monitoring, and if all goes well he will be discharged Thursday. We had an appointment with the Acquired Brain Injury Clinic on March 24th and they were able to move it to this Thursday. This is a huge relief, the flights are exhausting and expensive. I don’t think we have to come back for 3 months…wahoo! He’s seriously so brave, strong, and had such a positive attitude. His attitude is the only thing that’s kept me so positive. I’m beyond proud of him and am striving to be more like him. Thank you all so much for all the support. We are so grateful for each and every per...

Paxton's Progress

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