Exhausting but Good Week

Wow, this week was busy. Pax went to school Monday through Thursday from 9:00-11:00. He always wanted to stay longer, but would crash when we got home. He brought his Harry Potter Spot It game to play at recess with his friends. He was able to participate in math lessons, which are his favorite part of the day. He had 5 appointments this week as well. All of them went good and we are trying to adjust to our new busy routine.

Today after his appointment, Brandon took him to Scheels to get new shoes and play a few games. He even got a strike with his left hand while bowling there. They then went to lunch and came home to play board games. I was able to nap and take the dog for a walk during this time.

Tonight, we ordered pizza and had a family game night. It was so nice to have the 4 of us together laughing again. I cherish my family so much. Braylon wanted to sleep in Paxton’s room tonight, so he is in the hammock under Paxton’s loft bed. I have a monitor to keep an eye on Pax at night so I’m sure I will know right away if he doesn’t make it all night in the hammock.

Everyone has been so kind and patient with us since we’ve been back. We are so lucky to be surrounded by such a great community. I truly feel so grateful my kids go to Boulder, they’ve all been amazing this week. I want to thank you all again for all the love and support. We are adjusting to our new normal and thankful for all of Paxton’s progress. We love you all.

Janell

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Paxton’s First Health Update

I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own. Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...

12/12/21

Today local bikers had a toy run for the hospital. It was a beautiful day so we were able to go out and watch them ride in on their motorcycles. Santa read a few stories after the bikes came through. It was really fun to watch. The rest of the day consisted mostly of ice cream and football. We do some PT on our own on Sundays and of course he wants to do more than they tell us to. Tomorrow we have a full day of therapies, and then former NASA astronaut, Ron Garan, is supposed to come up for a visit. We are so excited. Paxton can’t wait! Bray had a blast at his aunt and uncle’s this weekend. They kept him busy and completely spoiled him. Brandon went back to Billings today. It was great for him to see all the progress Paxton has made. Zumi came back from her dream vacation on the ranch with Tessa. Brandon said she whined and stood at the front door after she left. Apparently she spent the weekend running around the corrals with the cows. We are looking forward to what this we...

Paxton's Progress

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