Skip to main content

First Outings

 We survived our first day of leaving the house. I was nervous because of the ice and snow. Walking in snow boots took a little getting used to for Pax. My friend Liz gave Pax such a good haircut. He looks so darn cute. ❤️ It was so nice to see her. Next, we went to get my booster and Paxton’s second dose of his COVID vaccine. The neurologist wanted him to get it ASAP when we got back. The hospitalizations of kiddos in Denver was rising rapidly. 

Our friends, the Lindh’s, brought us dinner and visited for a bit. It feels so nice to actually see the people who have supported us so much. I look forward to continuing to see people, even if I cry every time. 

Bray and Pax have been playing a lot together. They are so happy to be together again. They giggle and laugh so much.

The hospital called today and we are scheduled to go back the week of February 14th. We are hoping to get some answers and possibly a solution depending on what they find. In the meantime, we focus on rehab, healing, and being together. 

Thanks so much for your continued support. I love you all.

Janell



Comments

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Making Progress

 About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories!  Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...
1 comment
Read more

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...
1 comment
Read more