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One Day at Time

 Every time I get overwhelmed I hear my grandma telling me to take it one day at a time. I miss her so much, but take comfort in knowing exactly what her advice would be because she helped me through most of the tough moments in my life.

Pax is still progressing really well. He surprises us every day with a new movements in his hands or leg. He continues to be positive and work hard. He loves being back at school. We are just waiting for all of his accommodations to be established so I can leave his classroom and allow him to be there without me.

We still haven’t found a speech therapist who can accommodate our scheduling needs of multiple sessions a week and someone who has some experience with stroke patients. The adult SLPs are experienced in stroke recovery but none will accept a 9 year old. The pediatric SLPs have waitlists and most don’t have stroke experience. We are looking at some options in Bozeman right now. We are in a critical time for regaining his speech and it’s frustrating we can’t find someone. 

Bray is having surgery to repair his perforated ear drum on Wednesday. This is the 4th attempt to fix it. If it doesn’t take we will be taking him to Denver too. It has severely affected his hearing which hasn’t helped his apraxia of speech or dyslexia. We need to get this figured out.

We were able to see Kevin and Erin this weekend. It was so nice to spend time with them. They brought the kids some gifts and supplied lots of hugs. The boys were sad when they left. 

Thanks for the continued love and support you have given us. It’s been a crazy journey and I still feel lost most days. Your support helps me have a more positive attitude. 

Janell


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