I’m waking up this morning feeling very blessed. So many people have reached out to support our family this week. Thank you for being such positive influences in our lives. Levi and Kristen have amazing friends that extended to our family this week. We are staying in a gorgeous, comfortable home of his while we are here. The place came stocked with drinks, food, and snacks. Then, we got 2 surprise deliveries last night at the house. My amazing support team of Amanda, Milton, Kacie, Daniel, Lindsay, and Michael had snacks, games, blankets, and even beer and wine delivered! I cried. We feel so loved and know we can get through all this with our support (and the wine of course). Brandon flies in today. We are so thankful Aunt Erin and Uncle Kevin can distract Bray for a few days. Surgery check in is at 5:30 tomorrow. I’m not sure how long it takes, we have a pre op today to discuss all the details. I will keep you updated. I can’t thank everyone enough!
Every time I get overwhelmed I hear my grandma telling me to take it one day at a time. I miss her so much, but take comfort in knowing exactly what her advice would be because she helped me through most of the tough moments in my life. Pax is still progressing really well. He surprises us every day with a new movements in his hands or leg. He continues to be positive and work hard. He loves being back at school. We are just waiting for all of his accommodations to be established so I can leave his classroom and allow him to be there without me. We still haven’t found a speech therapist who can accommodate our scheduling needs of multiple sessions a week and someone who has some experience with stroke patients. The adult SLPs are experienced in stroke recovery but none will accept a 9 year old. The pediatric SLPs have waitlists and most don’t have stroke experience. We are looking at some options in Bozeman right now. We are in a critical time for regaining his speech and it’s fru...
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