Skip to main content

Healing

 Pax had an ok night. He is super swollen and fairly miserable. They had to do neuro checks every hour which includes shining a light in his eyes. His pain increased about midnight so they gave him morphine. He was at least able to get a little sleep then.

They had to access the AVM by going through the temporalis muscle which is making it painful for him to eat this morning. He has ice packs and they gave him some more medicine for pain so we hope he can eat. 

He will have a quick MRI at some point this morning. We are hoping to get out of the ICU if the scan looks good and his blood pressure stays stable.

We haven’t noticed any setbacks with his hand or leg. His face is drooping a tiny bit more, but it’s hard to tell if it’s from the swelling. His speech is slow (hopefully it’s just from everything he’s been through) but he is speaking. We are so relieved he doesn’t have any major, obvious setbacks.

All the love, prayers, and support have been so appreciated. We are lucky to have such an amazing support network. 

Janell

Comments

Post a Comment

Popular posts from this blog

Making Progress

 About 15 minutes ago I was on the phone with my cousin Amanda, and Pax started to get excited and showed me he could lift the upper part of his arm! He was trying so hatrd, his teeth were clenched and his face was red but he did it! He also got to say “hi” and “I love you” to his cousins Eva and Nellie. His day started off with another migraine, but we were able to get it under control by 10:30. He then got his feeding tube out. 🎉 He’s on a 3 day strict calorie count and if he can get enough calories and fluid in, we can keep it out. I caught him taking selfies with his ipad after it was removed. So exciting. After working so hard at therapy, we went for our daily ice cream. This definitely helps with the calories!  Paxton receive care packages from his friend, Ethan and his family, his friend Cooper, The Menascos, and his grandparents. He is definitely feeling loved. I was able to get out and walk today. The wind was freezing but the fresh air felt good. I’m so grateful to ...
1 comment
Read more

Bittersweet Goodbyes

 Well, we made it through the last day of therapies and coordinating home treatments. It was really hard to say goodbye to everyone who helped Paxton not only survive, but progress so quickly. We shared a few tears with a few of the therapists and nurses today. My dad and Krissi made my life so much easier today. They got us boxes and a few things I needed to travel home. Krissi and I packed up all our stuff and they took it to be shipped to us. We were then able to have our last ice cream date (until next month).  Pax had a lot of final evaluations at all therapies today getting ready to transition to outpatient work. He is exhausted but so ready to go home. I am slightly nervous about getting home tomorrow because there is a winter storm coming into Denver and we are already getting warnings of possible delays and cancellations. All we want to do is get home.  We will continue to keep everyone updated on progress and the results of future appointments. Today it sounded ...
Post a Comment
Read more

Familiar Faces

 We finally got moved out of the ICU yesterday afternoon. As we were being wheeled into his room we saw one of his favorite nurses from last time. He wasn’t our nurse yesterday, but he came to visit twice. This morning, Peter, our favorite CA, came to say hello as he was getting off shift. Then, his favorite nurse, Gretchen, just came to say hi. Our nurse today is one of our nurses from rehab as well. She is amazing and making sure everything is in line for us and getting us all the services we need. One of his PTs from last time visited this morning and will take him to the rehab gym later. He’s still pretty swollen but better than yesterday. He’s talking and smiling a bit more today. We are working on eating and drinking enough to keep the IV out.  The neurosurgeon stopped by morning. He said things on his end were looking good. He has an angiogram on Wednesday, and we are hoping to be discharged after he recovers from that (hopefully by the afternoon that day). Again, we ar...
Post a Comment
Read more