Skip to main content

Healing

 Pax had an ok night. He is super swollen and fairly miserable. They had to do neuro checks every hour which includes shining a light in his eyes. His pain increased about midnight so they gave him morphine. He was at least able to get a little sleep then.

They had to access the AVM by going through the temporalis muscle which is making it painful for him to eat this morning. He has ice packs and they gave him some more medicine for pain so we hope he can eat. 

He will have a quick MRI at some point this morning. We are hoping to get out of the ICU if the scan looks good and his blood pressure stays stable.

We haven’t noticed any setbacks with his hand or leg. His face is drooping a tiny bit more, but it’s hard to tell if it’s from the swelling. His speech is slow (hopefully it’s just from everything he’s been through) but he is speaking. We are so relieved he doesn’t have any major, obvious setbacks.

All the love, prayers, and support have been so appreciated. We are lucky to have such an amazing support network. 

Janell

Comments

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...
1 comment
Read more

12/12/21

 Today local bikers had a toy run for the hospital. It was a beautiful day so we were able to go out and watch them ride in on their motorcycles. Santa read a few stories after the bikes came through. It was really fun to watch. The rest of the day consisted mostly of ice cream and football. We do some PT on our own on Sundays and of course he wants to do more than they tell us to. Tomorrow we have a full day of therapies, and then former NASA astronaut, Ron Garan, is supposed to come up for a visit. We are so excited. Paxton can’t wait! Bray had a blast at his aunt and uncle’s this weekend. They kept him busy and completely spoiled him. Brandon went back to Billings today. It was great for him to see all the progress Paxton has made. Zumi came back from her dream vacation on the ranch with Tessa. Brandon said she whined and stood at the front door after she left. Apparently she spent the weekend running around the corrals with the cows.  We are looking forward to what this we...
1 comment
Read more