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Busy Sunday

 I just want to start out by thanking everyone who has called, text,  private messaged, donated, commented, and prayed. We are seriously overwhelmed (in a good way) by the support we have received from friends, family, neighbors, and strangers. It made me realize there’s still a lot of good in people even though we are living in crazy times.

Pax had a pretty good day. We started out early with PT this morning. He got to go to the therapy gym for the first time. They have tons of amazing equipment. Today’s therapy was a game of Jenga with dad. This helped his core strength and using his arm. Dad won, but we are all pretty confident he cheated.

After PT we did feeding therapy. Paxton was able to eat 2 veggie straws, up from 1 goldfish yesterday. He was able to swallow a little water as well. The therapist gave us permission to try ice cream! There is a little gelato shop in the lobby of the hospital. We loaded him up in his wheelchair and went on an ice cream run. He got hazelnut flavor and LOVED it. He probably ate 4 spoonfuls which is significantly more than he’s eaten up to this point. 

Paxton also got to take his first shower today. It’s a learning curve for both of us, but I’m sure with time we will have down to a science.

Bray and Pax were able to play Roblox together today online. Pax smiled the entire time, and Bray was so sweet and patient with him.

Sounds like the real work starts tomorrow. They have a pretty rigorous therapy schedule during the week. We are excited to get going on it all.

We snuggled in his bed and watched some TV this evening.  We were both exhausted. He got his IV out, which is a huge step in the right direction. Pax gets frustrated but still laughs when I’m guessing what he’s trying to tell me and I’m way off base. He’s still the sweetest boy ever. I’m so proud of him and want nothing more than to take away his pain and frustration. He is my hero.

Love to you all.

Janell 

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