Skip to main content

Busy Sunday

 I just want to start out by thanking everyone who has called, text,  private messaged, donated, commented, and prayed. We are seriously overwhelmed (in a good way) by the support we have received from friends, family, neighbors, and strangers. It made me realize there’s still a lot of good in people even though we are living in crazy times.

Pax had a pretty good day. We started out early with PT this morning. He got to go to the therapy gym for the first time. They have tons of amazing equipment. Today’s therapy was a game of Jenga with dad. This helped his core strength and using his arm. Dad won, but we are all pretty confident he cheated.

After PT we did feeding therapy. Paxton was able to eat 2 veggie straws, up from 1 goldfish yesterday. He was able to swallow a little water as well. The therapist gave us permission to try ice cream! There is a little gelato shop in the lobby of the hospital. We loaded him up in his wheelchair and went on an ice cream run. He got hazelnut flavor and LOVED it. He probably ate 4 spoonfuls which is significantly more than he’s eaten up to this point. 

Paxton also got to take his first shower today. It’s a learning curve for both of us, but I’m sure with time we will have down to a science.

Bray and Pax were able to play Roblox together today online. Pax smiled the entire time, and Bray was so sweet and patient with him.

Sounds like the real work starts tomorrow. They have a pretty rigorous therapy schedule during the week. We are excited to get going on it all.

We snuggled in his bed and watched some TV this evening.  We were both exhausted. He got his IV out, which is a huge step in the right direction. Pax gets frustrated but still laughs when I’m guessing what he’s trying to tell me and I’m way off base. He’s still the sweetest boy ever. I’m so proud of him and want nothing more than to take away his pain and frustration. He is my hero.

Love to you all.

Janell 

Comments

Post a Comment

Popular posts from this blog

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...
Post a Comment
Read more

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...
1 comment
Read more

12/12/21

 Today local bikers had a toy run for the hospital. It was a beautiful day so we were able to go out and watch them ride in on their motorcycles. Santa read a few stories after the bikes came through. It was really fun to watch. The rest of the day consisted mostly of ice cream and football. We do some PT on our own on Sundays and of course he wants to do more than they tell us to. Tomorrow we have a full day of therapies, and then former NASA astronaut, Ron Garan, is supposed to come up for a visit. We are so excited. Paxton can’t wait! Bray had a blast at his aunt and uncle’s this weekend. They kept him busy and completely spoiled him. Brandon went back to Billings today. It was great for him to see all the progress Paxton has made. Zumi came back from her dream vacation on the ranch with Tessa. Brandon said she whined and stood at the front door after she left. Apparently she spent the weekend running around the corrals with the cows.  We are looking forward to what this we...
1 comment
Read more