Skip to main content

Headway

 Braylon’s surgery went well. We won’t know if it’s successful for a while. Fingers crossed. He’s feeling good, not much pain, just tired. Hopefully he will be alert enough to do some homework. I’m not telling him that though so there’s no exaggeration of symptoms! 😂

We were able to get ahold of the speech therapist in Bozeman that’s willing to treat Pax virtually 2 times a week. We just need to go for an initial evaluation in person next week. We are going to spend the night at my cousin (The Menasco’s) house. I don’t know if he’s more excited or if I am. I will try to keep my crying to a minimum. We’ve missed them so much and they are a huge part of our support system not only now, but before the stroke.

Pax had a neurology appointment yesterday. We are going to try a preventative medication for his migraines. Our options are fairly limited with the unknown etiology of his stroke. He has a quick MRI scan on Saturday to see if enough blood has absorbed for Denver to get good images in a few weeks. The scan here isn’t super detailed but if they see something emergent they will get us to Denver sooner.

I was able to sell my car today. It was pretty high off the ground and not super easy for Pax to get in and out of. Also, the gas mileage was terrible and we literally drive all over Billings every day for appointments. 

We are doing ok. I know my last post exposed some of my struggles and anxieties. I really do try to find the positives every day, but I also have the human emotion component that takes over sometimes. Thank you to everyone who reached out to me. I love you all.

Janell


Comments

Post a Comment

Popular posts from this blog

Long Overdue Update

 I'm not sure if anyone even checks this anymore since I kind of stopped doing updates. I apologize for the gap in time. To be honest, I've been struggling with some depression over Milton's death and PTSD about Paxton. I am working on both of these and hoping to start feeling better. Enough about me. Paxton is doing AMAZING! He is done with PT. He crushed all his goals and they said there wasn't much more they could do for him. He is still in OT 1x week, mostly working on fine motor skills with his right hand. He currently does any writing or drawing with both hands. He continues with speech therapy twice a week. Speech is still his biggest deficit, but he has come so far. He struggles with bigger words or saying longer sentences. He communicates great and everyone knows what he is saying.  School is going great. They just completed state-wide testing and he surpassed all the goals that were set at the beginning of the year before his stroke. We are all so incredibly p...
Post a Comment
Read more

Brave Boy

 We ended up having to stay another night in the PICU, but we get to move to the neuro floor today. He is very excited to get out of the ICU. It’s really bright and noisy here. Yesterday his favorite physical therapist came and helped him get out of bed and stand. He smiled so big when he saw her. Today he was able to walk around the hall a little with PT and OT. He’s slow moving but improving. His face and head are super swollen. His right eye is swollen shut, but he’s not complaining. The majority of his pain is still coming from the cut muscle which makes eating not fun. Brandon is flying home today. Pax was pretty sad to see him go but knows Bray needs dad, too. I presume Bray had a good weekend since his responses to us were limited. 😂 Thanks for all the continued love and support. We don’t have a projected discharge date, but will keep you updated. Janell
Post a Comment
Read more

Feeling Better

 Pax is doing much better today. His silly personality is back. ❤️ He’s still a little swollen but much better. His jaw hurts a little less so he’s eating more. He crushed it at PT yesterday, and can’t wait to go back to the rehab gym later today. His angiogram is first thing tomorrow morning. He hates being sedated and can’t get up and move for 4 hours after the procedure. They will keep us overnight tomorrow for monitoring, and if all goes well he will be discharged Thursday. We had an appointment with the Acquired Brain Injury Clinic on March 24th and they were able to move it to this Thursday. This is a huge relief, the flights are exhausting and expensive. I don’t think we have to come back for 3 months…wahoo! He’s seriously so brave, strong, and had such a positive attitude. His attitude is the only thing that’s kept me so positive. I’m beyond proud of him and am striving to be more like him. Thank you all so much for all the support. We are so grateful for each and every per...
Post a Comment
Read more