Skip to main content

Brave Boy

 We ended up having to stay another night in the PICU, but we get to move to the neuro floor today. He is very excited to get out of the ICU. It’s really bright and noisy here.

Yesterday his favorite physical therapist came and helped him get out of bed and stand. He smiled so big when he saw her. Today he was able to walk around the hall a little with PT and OT. He’s slow moving but improving.

His face and head are super swollen. His right eye is swollen shut, but he’s not complaining. The majority of his pain is still coming from the cut muscle which makes eating not fun.

Brandon is flying home today. Pax was pretty sad to see him go but knows Bray needs dad, too. I presume Bray had a good weekend since his responses to us were limited. 😂

Thanks for all the continued love and support. We don’t have a projected discharge date, but will keep you updated.

Janell

Comments

Popular posts from this blog

NASA Day!

 We just had the coolest visitor, former NASA astronaut, Ron Garan! My brother and Amanda did a cameo.com message with Ron for Paxton last week. Ron then reached out to Amanda and said he lived in the area and wanted to meet Paxton. He brought patches from his missions including one that he actually wore in space. He also wrote two books, one children’s book and one adult book that he signed for each of us. We can’t wait to read them! He stayed for about an hour and was so sincere and genuine. We are still in shock I think! Paxton’s day was full of therapies. After his afternoon PT session they said he was doing things he was unable to do during the morning session. He is crushing it! We are still going downstairs for his daily ice cream run. He deserves it after all his hard work. Tomorrow he will have a swallow study to see what he can safely eat and drink. We really want to get the NG tube out as soon as we can. Pax received 3 care packages today. He loves when the volunteers br...

Paxton’s First Health Update

 I’m hoping to use this page for anyone who want to track Paxton’s health progress. I am not great about getting back to everyone’s calls and texts, but I appreciate them more than I can tell you. On Monday, November 29, Paxton came home from school looking and feeling great. Within a half hour of being home he started to panic because he couldn’t talk. I instantly noticed the right side of his body starting to give out. We immediately called 911 and were taken to the ER where he was evaluated by the stroke team. He was diagnosed with a large brain bleed on the left side. We were med flighted to Denver and taken to the PICU. Thankfully, he remained conscious and breathing on his own.  Many (and I mean a lot) of doctors and specialists examined him and ran multiple tests. All we know is that he had a stroke (from the bleed) and it is centered over the part of his brain that produces speech. Yesterday, we were cleared to leave the PICU and were transferred to the in-patient reha...

Good Vibe Friday

We are so thankful for all the support we have received. The Paxton Brown day at school was a huge success. We are so blessed to be part of the Boulder Family. I honestly don’t have words for how grateful I am for everyone who made the day so amazing. My cousins knocked it out of the park with Good Vibe Friday. Paxton loved all the personalized messages and was stunned to see his best friend Clark sending him love. He literally smiled through the entire thing. We even got a shout out from Hawaii. Paxton's therapies went great today. He was able to pedal a bike around the entire floor. He’s still finding his voice, but it’s very patient with me when I try to guess what he’s trying to tell me. Brandon came today and got to see firsthand all the progress Paxton has made this last week. We’ve sent him lots of videos and FaceTimed, but it’s so different to see it in person. Brandon is spending the night at the hospital with him and I’m staying at the hotel across the street tonight. It ...